Hi, I am suffering from facial-scapular-peroneal myopathy. I'd like to be informed on the evolution of my condition and possibly make contact with other people with the same disease, to participate in initiatives aimed at raising awareness and give, however useful,
a personal contribution to research. Today I have 55 years, and only 10 years ago my "apparent weakness" was diagnosed. Greetings Marialuisa
Contact:
associazioni@telethon.it
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